Theme 3. Employing and empowering the patient and caregiver perspective
Adults with intellectual and developmental disabilities (IDD) are more likely to live in poorer neighbourhoods, visit emergency departments more often, have more preventable hospitalizations and are less likely to undergo preventative care screening. It has been shown that the completion of the annual health check in this population has a positive impact on a number of health measures (Durbin 2017). The current 2011 guidelines for the Primary Care of Adults with Intellectual and Developmental Disabilities (IDD) recommend annual health checks for all adults with IDD as well as access to interprofessional care. However, in 2010, only 22% of adults with IDD had an annual health check completed. This workshop will present the results of patient and caregiver focus groups, a patient-informed consultation and the co-construction of an interprofessional model to complete the annual health check. It will outline the steps to identify adults with IDD within a practice population, and outreach methods to engage these patients/ caregivers/family. Patients/self-advocates from the practice will present the results of the focus groups and their experience in presenting to interprofessional teams. Power point presentations to these teams (by discipline) which include both relevant guidelines and focus group feedback will be reviewed. The presentation will include EMR templates created to determine interprofessional consultations needed as well as the specific interprofessional templates incorporating both feedback and relevant primary care guidelines. The templates created from this consultation will be made available in addition to adapted tools appropriate for this population. These tools would be available for use across the province in family health team settings.